Patient Educational Materials

Northwest Renal Network

 

 

The following list contains the most frequently requested materials.   Northwest Renal Network is able to provide additional information and resources on other topics as needed. 

 

If you need any assistance or would like to request us to mail you a copy of the materials, please contact us.

 

Patient Toll- Free Number for Northwest Renal Network:  1-800-262-1514

 

Topic List:

 

Material Title

Topic

PDF Link

Adequacy

Just the Facts:  Getting Enough Hemodialysis

Short Description:  A handout discussing how to tell if you are getting enough dialysis.

PDF English

PDF Spanish

Source:

Life Options

Version:

3/2005

Peritoneal Dialysis Dose and Adequacy

Short Description:  A fact sheet explaining how to measure the effectiveness of peritoneal dialysis.

PDF

Source:

National Institutes of Health

Version:

12/2006

Advance Directives

Five Wishes

Short Description: A booklet that gives patients a way to control something very important – how they are treated if they get seriously ill.  It contains a form to designate a health care agent and living will.  Forms are honored by the following Network states:  Alaska, Idaho, Montana, and Washington (NOT Oregon).

PDF English

PDF Spanish

 

Preview Only – not able to print PDF

Source:

Aging with Dignity

Version:

2007

Advance Care Planning:  For the Dialysis Patient and Their Family

Short Description:  A brochure discussing how to go about advance care planning including practical suggestions.

Not available online: Contact Us for a hard copy

Source:

Mid-Atlantic Renal Coalition

Version:

10/2005

Advance Directive Planning for Important Healthcare Decisions

Short Description: State specific forms for creating durable power of attorney for health care and health care directives.

PDF Washington

PDF Oregon

PDF Montana

PDF Alaska

PDF Idaho

For hard copies call

1-800-658-8898

Source:

Caring Connections

Version:

Updated regularly

Anemia

Managing Anemia When You Are on Dialysis: Stage 5

Short Description:  A booklet reviewing anemia and common questions. 

PDF

Source:

National Kidney Foundation

Version:

2006

Just the Facts: Anemia

 

Short Description:  A handout reviewing the basics of anemia and anemia management.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

2005

Understanding Anemia in Kidney Disease

Short Description:  A booklet reviewing: what is anemia, how anemia is diagnosed, what causes anemia, and how is anemia treated.

PDF

Source:

American Association of Kidney Patients

Version:

2007

Bone Health

Understanding High Phosphorus and Your Treatment Options

Short Description:  A brochure discussing high phosphorus and what you can do to control it. 

PDF

Source:

American Association of Kidney Patients

Version:

2006

Phosphorus Additives and Hidden Phosphorus

Short Description:  A handout listing the food products commonly containing phosphorus additives and hidden phosphorus.

PDF Additives

PDF Hidden

Source:

Case Center for Reducing Health Disparities

Version:

Unknown

Caregivers

Caregiver Self-Assessment Questionnaire

Short Description:  A helpful self-assessment for caregivers and a list of useful resources.

PDF English

PDF Spanish

Source:

American Medical Association

Version:

Unknown

Chronic Kidney Disease (Not on dialysis/Does not have transplant)

Kidney Beginnings:  A Patient’s Guide to Living with Reduced Kidney Function

Short Description:  A booklet about kidney disease and how to manage it.

PDF

Source:

American Association of Kidney Patients

Version:

Unknown

High Blood Pressure and Chronic Kidney Disease (Stages 1-4)

Short Description:  A booklet on high blood pressure and chronic kidney disease including how they are related.

PDF

Source:

National Kidney Foundation

Version:

2007

How Well Are Your Kidneys Working?

Short Description:  A handout explaining how GFR is used to measure your kidney function and what it means. 

PDF

Source:

National Kidney Disease Education Program; National Institutes of Health

Version:

5/2008

Coping & Depression

Understanding Depression In Kidney Disease

Short Description:  A booklet discussing the lifestyle challenges of kidney disease, how to recognize depression, and how to treat depression.

PDF

Source:

American Association of Kidney Patients

Version:

2007

When Your Loved One Is Depressed: Tips on How You Can Help

Short Description:  A booklet reviewing: what is depression, symptoms of depression, and suggestions on what you can do to help someone with depression.  

PDF

Source:

American Association of Kidney Patients

Version:

2007

Just the Facts: Dealing with Depression

Short Description:  A handout on issues related to depression.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

2005

It’s Not All in Your Head

Short Description:  A newsletter article discussing the causes of depression, treatment, and prevention.

PDF

PDF Large Print

Source:

Northwest Renal Network

Version:

08/2008

Diabetes & High Blood Pressure

For People with Diabetes or High Blood Pressure: Get Checked for Kidney Disease

Short Description:  A brochure explaining how diabetes and high blood pressure can affect your kidneys.

PDF English

PDF Spanish

Source:

National Kidney Disease Education Program, Dept. of Health and Human Services

Version:

2009

Diabetes and Chronic Kidney Disease

Short Description:  A brochure explaining how diabetes can affect your kidneys.

PDF

 

Source:

National Kidney Foundation

Version:

2007

High Blood Pressure and Your Kidneys

Short Description:  A brochure explaining how high blood pressure can affect your kidneys.

Not available online: Contact Us for a hard copy

Source:

National Kidney Foundation

Version:

2006

Dialysis Facility Compare

Guide to Medicare Certified Dialysis Facilities

Short Description:  A guide to assist with accessing the comparative quality and facility information for Medicare certified dialysis facilities found in Dialysis Facility Compare.

PDF English

PDF Spanish

Source:

Centers for Medicare & Medicaid Services

Version:

2008

Compare Quality

Short Description:  An information card on the CMS Dialysis Facility compare website.

Not available online: Contact Us for a hard copy

Source:

Centers for Medicare & Medicaid Services

Version:

Unknown

Emergency Preparedness

Keep It With You

Short Description:  A form for patients to keep with them during times of disaster to document their medical needs and information.

PDF

Source:

Centers for Disease Control and Prevention

Version:

2005

Disaster Preparedness Checklist for Individuals with Kidney Failure

Short Description:  A checklist of things patients need to consider when preparing for a disaster.

PDF

Source:

Northwest Renal Network

Version:

2008

Planning for Emergencies

Short Description:  A booklet providing thorough instructions to kidney patients on how to prepare for possible emergencies.

PDF

 

Source:

National Kidney Foundation

Version:

2006

Preparing for Emergencies:  A Guide for People on Dialysis

Short Description:  A booklet providing instructions and information on how to prepare for emergencies, for people on dialysis.

PDF English

PDF Spanish

Source:

Centers for Medicare & Medicaid Services

Version:

10/2007

Be A Survivor

Short Description:  A newsletter article discussing the importance of being prepared for disasters and emergencies. 

PDF

PDF Large Print

 

 

Source:

Northwest Renal Network

Version:

5/2009

Exercise

Just the Facts:  Exercise for Life

Short Description:  A handout discussing the importance of exercise for kidney patients.  It includes helpful hints.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

3/2005

Financial Concerns

Taking Control – Money Matters for People with Chronic Kidney Disease

Short Description:  A comprehensive booklet on financial issue related to kidney disease

PDF

Source:

National Endowment for Financial Education & National Kidney Foundation

Version:

2005

Hemodialysis

You Can Live:  Your Guide for Living with Kidney Failure

Short Description: 

See Living Well Section

Source:

 

Version:

 

AAKP Patient Plan: Phase One

Short Description:  A booklet discussing issues and common questions for people facing treatment for kidney failure.

PDF

Source:

American Association of Kidney Patients

Version:

2008

Understanding Your Hemodialysis Options

Short Description:  A booklet explaining the different types of hemodialysis.

PDF English

PDF Spanish

Spanish version currently not available in hard copy

Source:

American Association of Kidney Patients

Version:

2005

Home Hemodialysis

You Can Live:  Your Guide for Living with Kidney Failure

Short Description: 

See Living Well Section

Source:

 

Version:

 

AAKP Patient Plan: Phase One

Short Description: 

See Hemodialysis Section

Source:

 

Version:

 

Home Dialysis Central Informational Card

Short Description:  An information card regarding the home dialysis central website.

Not available online: Contact Us for a hard copy

Source:

Medical Educational Institute, Inc.

Version:

Unknown

Understanding Your Hemodialysis Options

Short Description: 

See Hemodialysis Section

Source:

 

Version:

 

Home Hemodialysis

Short Description:  A brochure explaining home hemodialysis options, benefits, risks, and barriers. 

PDF

Source:

National Institute of Diabetes and Digestive and Kidney Diseases/ National Institutes of Health

Version:

02/2008

Immunization

Vaccinations for Adults

Short Description:  A handout explaining what vaccinations are recommended for adults based on age and medical conditions.

PDF English

PDF Spanish

Source:

Immunization Action Coalition

Version:

04/2009

Understanding Vaccines: What They Are How They Work

Short Description:  A 55-page booklet containing general information about vaccines including: what they are, how they prevent disease, how they are made and tested, and what vaccine research might achieve in the future. 

PDF

Source:

National Institute of Allergy and Infectious Diseases/National Institutes of Health

Version:

01/2008

Living Well

You Can Live:  Your Guide for Living with Kidney Failure

Short Description:  A government booklet giving tips on treating kidney failure, making treatments better, and living a healthier lifestyle.

PDF

Source:

Centers for Medicare & Medicaid Services

Version:

2/2007

Dialysis and Your (Health-related) Quality of Life

Short Description:  A patient newsletter article discussing the importance of assessing Health-related Quality of Life. 

PDF

PDF Large Print

 

Source:

Northwest Renal Network

Version:

10/2009

Medicare

Medicare Coverage of Kidney Dialysis and Kidney Transplant Services

Short Description:  An official government booklet explaining the basics of Medicare, how Medicare helps pay for kidney dialysis and kidney transplants, and where to get help

PDF

Available in Spanish from 1-800-MEDICARE

Source:

Centers for Medicare & Medicaid Services

Version:

5/2008

Medicare & You 2010

Short Description:  An official government handbook with important information on the following:  2009 costs, what’s covered, preventive services, health plans, prescription drug plans, and your rights and appeals.

PDF English

PDF Spanish

 

Currently not available in hard copy

Source:

Centers for Medicare & Medicaid Services

Version:

2010

Your Medicare Rights and Protections

Short Description:  An official government booklet on your rights and protections as a Medicare beneficiary.

PDF

 

Only 2007 version available in hard copy

Source:

Centers for Medicare & Medicaid Services

Version:

9/2009

Medicare Part D

Your Guide to Medicare Prescription Drug Coverage

 

Short Description:  This official government booklet tells you about: how Medicare prescription drug coverage works, extra help for people with limited income and resources, and how this coverage may affect your current drug coverage.

PDF English

PDF Spanish

         v 2/2008

Currently not available in hard copy

Source:

Centers for Medicare & Medicaid Services

Version:

5/2009

Medicare Prescription Drug Coverage:  How to Join a Medicare Drug Plan

Short Description:  A government handout on how to join a Medicare drug plan. 

PDF English

PDF Spanish

Source:

Centers for Medicare & Medicaid Services

Version:

9/2007

Medicare and Part D 2009 Update

Short Description:  A detailed document discussing the Medicare and Part D program with special focus on kidney related issues, questions and concerns.

PDF

 

Source:

Kidney Medicare Drugs Awareness and Education Initiative

Version:

11/2008

Northwest Renal Network

The Role of the Network in Handling Complaints and Grievances

Short Description:  A handout explaining how the Network can help with complaints and grievances.  It also contains a list of the contact information for the State Survey Agencies in the region.

PDF English

PDF Spanish

Source:

Northwest Renal Network

Version:

5/2009

Network Introduction Letter

Short Description:  A letter briefly explaining the mission and services of the Northwest Renal Network.

PDF

Source:

Northwest Renal
Network

Version:

7/2009

Network Patient Advisory Committee (PAC)

Short Description: A brief handout describing the Network’s PAC and its role.  

PDF

Source:

Northwest Renal Network

Version:

1/2008

Nutrition

Dining Out with Confidence: A Guide for Patients with Kidney Disease

Short Description:  A brochure discussing the issue of dinning out and the special dietary needs of kidney patients.

PDF

Source:

National Kidney Foundation

Version:

2007

Just the Facts:  Fluid and Dialysis

Short Description:  A handout explaining fluid considerations and dialysis.  It includes helpful hints.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

3/2005

Patients In Control Newsletter:  Protein: an Important Part of Your Dialysis Diet

Short Description:  A newsletter discussing the importance of protein in the kidney diet. 

PDF

Source:

Medical Education Institute/Life Options Publication

Version:

3/2007

Eating to Feel Right on Hemodialysis

Short Description:  A booklet explaining the basics of the renal diet for hemodialysis.

PDF English

PDF Spanish         v 5/2007

Source:

National Institute of Diabetes and Digestive and Kidney Diseases/ National Institutes of Health

Version:

8/2008

Nutrition Counter

Short Description:  A reference card listing common food items and the amount of potassium, phosphorus, protein, etc. in them.

PDF English

PDF Spanish

Source:

American Association of Kidney Patients

Version:

03/2006

Other Topics

Just the Facts:  Skin and Hair Problems on Dialysis

Short Description:  A handout discussing skin and hair problems some dialysis patients experience.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

03/2005

Patient Rights

Patients’ Rights

Short Description:  A handout listing the minimum rights for consumers.

PDF English

PDF Spanish

Source:

Northwest Renal Network

Version:

09/2009

 

Kidney School: Module Fourteen – Patient Rights and Responsibilities

Short Description:  A printed version of an online course on patient rights and responsibilities.  It is recommend to go through the course online at www.kidneyschool.org

PDF

Source:

Kidney School

Version:

2005

Can I Refuse My Nurse or Technician

Short Description: An article discussing the common question of whether or not a patient can refuse care from specific staff person. 

PDF

Source:

Northwest Renal Network

Version:

11/2007

Voicing Concerns

Short Description: An article discussing some tips on how to raise care concerns.

PDF

PDF Large Print

 

Source:

Northwest Renal Network

Version:

1/2009

Pediatric Patients

Organ Transplant:  What Every Kid Needs to Know

Short Description: Information to make the transplant process easier to understand for elementary-age children in need of an organ transplant.

PDF

Source:

United Network for Organ Sharing

Version:

Unknown

Overview of Kidney Diseases in Children

Short Description:  A fact sheet reviewing what your kidneys do and the causes of kidney failure in children.

PDF

 

Source:

National Institute of Diabetes and Digestive and Kidney Diseases/ National Institutes of Health

Version:

6/2006

School & Family Problems of Children with Kidney Failure

Short Description:  A fact sheet reviewing how a serious and long-lasting medical condition like kidney failure may affect parts of a child’s life. 

PDF

Source:

National Institute of Diabetes and Digestive and Kidney Diseases/ National Institutes of Health

Version:

6/2006

Treatment Methods for Kidney Failure in Children

Short Description:  A fact sheet reviewing kidney failure in children and treatment options.

PDF

Source:

National Institute of Diabetes and Digestive and Kidney Diseases/ National Institutes of Health

Version:

4/2006

Peritoneal Dialysis

You Can Live:  Your Guide for Living with Kidney Failure

Short Description: 

See Living Well Section

Source:

 

Version:

 

AAKP Patient Plan: Phase One

Short Description: 

See Hemodialysis Section

Source:

 

Version:

 

Understanding Your Peritoneal Dialysis Options

Short Description:  A booklet explaining peritoneal dialysis.

PDF English

PDF Spanish

Source:

American Association of Kidney Patients

Version:

2005

Rehabilitation

Keeping Your Job When You Need Dialysis

Short Description:  A detailed handout discussing how to keep working while on dialysis.

PDF

Source:

Medical Educational Institute

Version:

2006

Vocational Rehabilitation Patient Resource List

Short Description:  A handout providing the contact information for State Dept. of Vocational Rehab (DVR) programs in the Network and online web resources related to vocational rehabilitation.

PDF

Source:

Northwest Renal Network

Version:

12/2008

Remaining Active

Short Description:  A patient newsletter article discussing the benefits of working and remaining active.  It includes information on incentives for people on Social Security Disability to return to the work force. 

PDF

PDF Large Print

Source:

Northwest Renal Network

Version:

2008

Self-care

Patients In Control

Short Description:  A newsletter reviewing the option of self-care. 

PDF

Source:

Medical Education Institute/Life Options Publications

Version:

9/2007

Special Populations

Diabetes & High Blood Pressure:  Make the Kidney Connection - What African Americans Need to Know

Short Description:  A brochure explaining how diabetes and high blood pressure can affect your kidneys.

PDF

Source:

National Kidney Disease Education Program, Dept. Of Health and Human Services

Version:

2007

Winning the Fight Against Silent Killers:  High Blood Pressure and Diabetes

Short Description:  A brochure explaining how diabetes and high blood pressure can affect your kidneys.

PDF

Source:

National Kidney Foundation

Version:

2007

Diabetes and Chronic Kidney Disease:  A Guide for American Indians and Alaska Natives

Short Description:  A brochure explaining how diabetes and high blood pressure can affect your kidneys.

PDF

Source:

National Kidney Foundation

Version:

2002

Health Disparities Affecting Minorities African-Americans

Short Description: A short brochure highlighting some examples of disparities and listing what you can do.

PDF

Source:

Office of Minority Health and Health Disparities

Version:

Unknown

Transplant and Organ Donation

Questions and Answers for Transplant Candidates and Families about Multiple Listing and Waiting Time Transfer

Short Description:  A brochure discussion the options of being listed at multiple transplant programs.

PDF English

PDF Spanish

Source:

United Network for Organ Sharing

Version:

2005

The Journey of Transplant Evaluation

Short Description:  A patient newsletter article discussing the transplant evaluation process.

PDF

PDF Large print

Source:

Northwest Renal Network

Version:

8/2009

Donate Life

Short Description:  A brochure on organ donation. 

Not available online: Contact Us for a hard copy

Source:

United Network for Organ Sharing

Version:

N/A

Partnering With Your Transplant Team

Short Description:  A valuable 106 page booklet that includes topics such as waiting for a transplant, sources of financial support, transplant resources and more.

PDF English

PDF Spanish

V 2006

 

Source:

United Network for Organ Sharing

Version:

2009

What Every Patient Needs to Know?

Short Description:  A comprehensive brochure for transplant patients on all aspects of the transplant process.

PDF English

PDF Spanish

Source:

United Network for Organ Sharing

Version:

Unknown

Travel

Traveling While on Dialysis

Short Description:  A handout providing tips on making arrangements for treatment while traveling.

PDF

Source:

Northwest Renal Network

Version:

11/2007

Just the Facts: Traveling on Dialysis

Short Description:  A handout discussing how to travel on dialysis.

PDF English

PDF Spanish

Source:

Life Options Rehabilitation Program

Version:

03/2005

Vascular Access

Understanding Your Hemodialysis Access Options

Short Description:  A brochure explaining the different vascular access options for hemodialysis patients. 

PDF English

PDF Spanish

Source:

American Association of Kidney Patients

Version:

2006

Hemodialysis Catheters:  How to Keep Yours Working Well

Short Description:  A brochure on hemodialysis catheters – includes a summary of access options and instructions on caring for a hemodialysis catheter. 

Not available online: Contact Us for a hard copy

Source:

National Kidney Foundation

Version:

2005

Vascular Access for Hemodialysis

Short Description: A chart comparing the vascular access options for hemodialysis.

PDF

Source:

Northwest Renal Network

Version:

2003

Protect Your Access – It’s Your Lifeline!

Short Description:  A handout describing how to protect your vascular access.

PDF

Source:

Northwest Renal Network

Version:

2004

Using the Buttonhole Technique for AV Fistula

Short Description:  A brochure explaining the buttonhole technique. 

PDF English

PDF Russian

PDF Spanish

Source:

Northwest Renal Network

Version:

2004

The Importance of Washing Your Access

Short Description:  An article discussing the medical reasons for needing to wash your access arm before treatment. 

PDF

Source:

Northwest Renal Network

Version:

2010

Staff Can You See It?  Patients – Won’t You Let Them?

Short Description:  An article on the importance of keeping your access visible at all times during treatment.

PDF

Source:

Northwest Renal Network

Version:

2004

ArterioVenous Fistula

Short Description: A brochure on vascular access options and reasons to consider a fistula.

PDF English

PDF Spanish

Source:

FistulaFirst

Version:

2009

ArterioVenous Fistula - FAQ

Short Description: A brochure on vascular access options and frequently asked questions.

PDF

 

Source:

FistulaFirst

Version:

2008

Caring For & Developing Your New Fistula

Short Description: A brochure listing exercises to develop new and immature fistulas. 

PDF

 

Source:

Heartland Kidney Network (NW 12)

Version:

12/2006

Your Role in AV Fistula Cannulation

Short Description:  A handout containing tips on what patients can do to protect their fistula.

PDF

Source:

Northwest Renal Network

Version:

11/2008

 

Disclaimer:  These resource materials are intended to be a general resource in regard to the subject matter covered.   You are encouraged to confirm the information contained in the materials with other sources, and to review the information carefully with your professional healthcare provider.  The contents of these materials do not necessarily reflect CMS policy.  Opinions and information appearing in these materials are those of the authors, and no endorsement is implied on the part of Northwest Renal Network or its Board of Directors and committees.

 

Document Updated August 19, 2010